When I was trying to get a diagnosis, I stumbled across a website with a mailing list that could be joined. I joined and posted my story. Within 24 hours, I had more than 30 email responses. The group proved to be an incredible resource of support and information while I was trying to find out if I did indeed have inflammatory breast cancer. If you are ever faced with this possibility, I urge you to join. Dr. Cristofanilli of MD Anderson even mentioned during the appointment that he heard I had been talking with his friends on the support board, as quite a few members are his patients.
The website is www.ibcsupport.org. The website also contains valuable information about IBC.
Additional information can also be found at:
MD Anderson Cancer Center:
https://www.mdanderson.org/cancer-types/breast-cancer.html
Click on the link on the left for the Inflammatory Breast Cancer Clinic
Inflammatory Breast Cancer Foundation:
Inflammatory Breast Cancer Research Foundation: